Total Care

Aim

The aim for this MasterParkinson Memo is to introduce a model of all the parts and roles involved to care for example a Person with Parkinson’s (PwP). We named it “Total Care”!

Right thing first

You might ask – Why on earth should we take time on theoretical models on high levels, when we don’t have the daily cooperation with the local care, with the MD/hospital etc. under control. Let’s sort that out first!Well that sounds appealing, but there is an important management know-how that tells us:

• Short range tasks eat the resources of the Long range tasks!

You can add the following: 

• In a hurry tasks are cared for with a higher priority than others. Even prior to the Important tasks

Organizations mismanaged in accordance with these aspects are often overloaded with repairing- and fixing, panic problem solving etc. Sometimes, when visiting an organization with low management skill I have got the feeling I am at a fire fighting station! The balance between short and long range tasks combined with the detailed and the overall view represents one of the most important areas to the Management of any organization.

Look at the total picture.  Find out :

• Who are the actors

• Which roleMission

• their contribution -5 to +5. View = The Cayresekers

• How do they perform, cooperate with other  parts

We have of course used  the Swedish HC system as base we  when developing the following model

Model

+ simplifies reality to understandable level

- tar oss bort från verkligheten

My own test

Imp Q?

1. Are they  working for the best of the care seekers or not?

2. Are their workflow and organization designed  to aim the best for the CS

take all parts I know and group them in subgroups. If we can find a model that the majority use. We automatically get possibility to measure and to evaluate different methods, organization etc.

In other words, this is hopefully the beginning of a dialogue/process that gives us a toolto a wide spread tool.dea possibilities to improve all parts of the “Care” (Total Care).

Most important of all if this leads to a model shared by many, is that you and I can communicate with each other in a effective way- And so for  all people with Parkinson’s  (PWPs) as well as and their relatives (ej klart!)

 

 

the  gives you MasterParkinson (MP) view of important factors influencing “Self Care” in the future.

The reward from you to us for starting this channel for communication comes the day you send your contribution to MP Dialogue!

We get the energy to support you in all ways from the following belief:

                      Together we can master Parkinson’s

We welcome you to MasterParkinson ABC web site. The place where we together find the answers how to care in order to cure.

And you know what? It all depends on YOU! We know that the only chance to succeed is hard work.

SIX MAJOR ROLES

I look upon Care as six participating parts sorted together after their ROLE as the common denominator.

Example for PwP (Person with Parkinson’s):

 

1. The Neurologist including the drugs, technical equipment, hospitals etc he/she can prescribe (Central units, Specialists, long range)

2. Local Care (close to home, Nurses, daily care giving)

PWP who plan and on a daily base carry out physical and mental training/actions in order to avoid a lot of the today normally predicted problems Self Carework

1. The relatives. Support to PWP

2. Insurance, Local government (Subsidy, Healthy/Sick, retirement etc)

3. Employer (Job, salary, support etc

 

To make it easy to understand let’s group them two by two: 

3+4 Self Care

B

1+2*) Society Care

A

5+6 Support Care

C

  *)

 We propose a structure like the ABC aBOVER   Self Cure is the result of Self Care! 

A

The Neurologist including the drugs, technical equipment, hospitals etc he/she can prescribe (Central units, Specialists, long range)

 

B

Local Care (close to home, Nurses, daily care giving)

 

1. PWP who plan and on a daily base carry out physical and mental training/actions in order to avoid a lot of the today normally predicted problems Self Carework

C

The relatives. Support to PWP

 

1. Insurance, Local government (Subsidy, Healthy/Sick, retirement etc)
2. Employer (Job, salary, support etc