Imagine that you have dressed up in your finest clothes and gone to the theater. You are standing among your friends in the theater lobby, in the little bar just below the graceful spiral of the grand staircase. It is intermission, and you are juggling a cup, a saucer, a spoon, a packaged creamer and, especially, the hot coffee in one hand. In the other you hold the evening’s program and a pastry you have been vainly trying to get a bite of for some time now.
Everyone who has been told he or she is suffering from a serious illness probably remembers that moment vividly. I can experience all over again the terrible chill I felt then. Everything in my head seemed to run down in my stomach. Down below my stomach did everything it could to defend itself against the intrusion, and all of it swirled around, bubbling and creating a sensation of impending nausea.
The first part of this memo is taken from chapter 4 in my book “I have Parkinson’s, but Parkinson’s does not have me”. I have taken out some parts in order to inspire you to do what I did. Not at the start though, because at that stage I was desperate, had no energy left and I didn’t want to live anymore. The story how my wife saved my life is amazing!